This time a year ago I was feeling so very lost, and I decided to write my feelings and our journey down via a blog, having only just found out exactly what a blog was! My blog now feels like it’s own person, I feel like it has its own identity!
Fast forward to today and I’ve now had 12 months of research on Sensory Processing Disorder (SPD) something that I wasn’t very familiar with, also Autistic Spectrum Disorder (ASD,) Pathological Demand Avoidance (PDA,) ADHD and Hypermobility. I’ve also started to look into more about genetic anomolies.
I now belong to several amazing support groups after feeling so alone in our journey, we’ve been able to connect with other families that experience the same as we do, these people just ‘get us.’ If we are experiencing a bad day or if I have a burning question I know that I can post my query online and someone will offer support or guidance about what they may do in the same situation.
12 months of research via the Internet, other people’s blogs, support groups, books, etc has taught me so much about how best to support my child, I understand so much more now that every behaviour certainly does have a reason and that for the majority of the time, there’s usually a sensory reason behind it. This has also taught me so much about me, about who I am and helped to answer so many questions I’ve had about my whole childhood and life so far. I have touched on this in posts about myself, but I’m keen to keep this blog about my child’s journey and I’ve recently found a new platform to express my feelings about my own journey that I may wish to share one day!
After the past 12 months of learning so much about additional needs, it has empowered me to want to work in the SEND sector and I’m keen to return to work in the later part of this year, I will certainly aim to keep posting on the blog as and when I can!
Through my daughter’s love of Sensory/Messy Play and Craft I have been able to develop activity ideas via #sensorymummyideas and #sensoryandcraftshare
This is a direction I hope to continue, especially through the summer months when we do a lot of Sensory and Craft activities.
I was so happy to be introduced to the charity Family Fund, who provided a grant for our daughter for Sensory equipment and Play Therapy sessions. I have been able to write monthly blog posts for this charity and we’ve had photos taken of our family that are used in their marketing materials.
Blogging has also reignited my passion for photography as I like to use my own photographs in the blog, I have also learnt how to edit photographs and add graphics to create my own quote pages.
I have learnt so much by being a member of a fantastic community of SEND bloggers, they post some amazing things via their blogs and I like to share as many as I can.
There have been times when I’ve wondered if I’m doing the right thing via sharing but one of the reasons for also starting the blog was to help other people – I always said if I help one other person it would be so worthwhile, I now have just over 340 Facebook likes on the Sensory Sensitive Mummy Facebook page, just over 700 Instagram followers and only today (how ironic!) hit 2,000 Twitter followers!
I am not predominantly worried about the stats of my blog, or social media but what this means is that the goal I had of spreading awareness of SPD has reached this many people, and I hope in the process, has helped with the understanding and acceptance that I’m so passionate about.
Thank you for everyone who has supported me over the last year 🙂
Here’s to the next 12 months!